The ALS association
My wife’s father, Mark Paffrath, passed away a few years ago from ALS. I’m so glad I was able to meet him, but was horrified by seeing what the disease does, firsthand. Every year since, Amy and I (and her whole family) walk in his honor, and hold a fundraising event donating all proceeds to finding a cure for ALS.
For our 4th anniversary, Amy and I are going to Nashville to run in the St Jude ‘Rock ‘N Roll Marathon.’ If you feel so inclined, we would GREATLY appreciate any donations to our walk page. All of your money will go to helping St Jude in their ongoing fight against childhood cancer.
Music is Medicine
I’ve written a song for and inspired by an amazing young lady, Brooke. Look forward to sharing it with you soon, and hope more recording artists get involved!
Art of Elysium
This is a wonderful organization I started volunteering with this year. From their site – ‘ The Art of Elysium encourages working actors, artists and musicians to voluntarily dedicate their time and talent to children who are battling serious medical conditions. We provide artistic workshops in the following disciplines: acting, art, comedy, fashion, music, radio, songwriting and creative writing.’
I’ve found it extremely rewarding and encourage ALL artists in LA who read this post to get involved!! Their website is The Art of Elysium
This disease seems not to get the attention it deserves from the medical community. I’ve had some close friends contract Lyme, and their lives have completely changed. I participated in a series of PSAs last year to increase awareness about Lyme and it’s symptoms. Please visit Lymenaide to learn what to look for and educate yourself.
Hannah’s Hope Fund
Hannah is a beautiful young girl who lives with Giant Axonal Neuropathy (GAN). It is a rare genetic disorder that slowly takes away one’s ability to walk, use one’s hands, speak, swallow and is terminal. Last year, Tiffany Giardina, Savannah Outten, Push Play, Ruth Collins and I held a benefit concert in Albany for Hannah. In spite of her illness, she had the biggest smile I’d ever seen in my life. Thank you to everyone who made that concert happen.
Hannah’s Hope Fund is a family driven 501C3 Public Charity, dedicated to funding research for a treatment and/or a cure for this horrible disorder. Check out their website www.hannahshopefund.org to learn about Hannah and the many ways you can help. Thank you.
I think it’s about time for everyone to be able to live their lives with equal protection under the law. My ‘I Kissed A Vampire’ cast-mates and I participated recently in a photo shoot in Hollywood for NOH8 in support of the campaign and it’s message. For more info (and to learn how to get your own NOH8 pics) check out http://www.noh8campaign.com/